Responding to the findings of the Learning Disabilities Mortality Review (LeDeR programme) is a priority for the West of England. Read more about LeDeR programme.
The disparity between the age of death for people with learning disabilities (age 4 years and over) and the general population (all ages) in 2019 was 22 years for males and 27 years for females. Many of these deaths continue to be from avoidable causes, such as pneumonia and sepsis. Read more about the age of death disparities for people with learning disabilities here.
The West of England Learning Disabilities Collaborative (LDC) was established in early 2019 to address this, by joining forces locally to focus on three key priority areas:
- Using the National Early Warning Score 2 (NEWS2) and soft-signs tools to support early identification of physical deterioration. Read about about NEWS2 here.
- Increasing uptake and standardising the quality of annual health checks. Read about Annual Health Checks from NHS England.
- Increasing uptake of flu vaccination, including promoting the nasal vaccine as a reasonable adjustment for people with a severe needle phobia. For a Plain-English guide to the flu vaccination, click here. Read more about the nasal vaccine as a reasonable adjustment here.
The West of England Learning Disabilities Collaborative is hosted by the West of England AHSN in collaboration with NHS England and NHS Improvement (South West) Learning Disability Programme Lead Nurse.
On behalf of the NHS, Misfits Theatre Company have created a great video which tackles the misinformation surrounding the flu vaccination and urges people with learning disabilities and their carers (family member or support worker) to get their flu vaccine.
Our 2021 virtual collaborative events
Our fifth virtual collaborative was held in January 2021. We explored the value of technology in supporting people with a learning disability and heard from expert speakers. Watch the January 2021 webinar here.
Our sixth virtual collaborative was held in March 2021. In the session we explored Mental Capacity Assessment. Watch the March 2021 webinar here.
Our 2020 virtual collaborative events
We hosted our first virtual Learning Disabilities Collaborative event in June 2020. Topics covered include COVID-19, recognising and responding to physical deterioration, annual health checks, and looking ahead to this year’s flu vaccination programme. Watch the video from June 2020 here.
Our second virtual Learning Disabilities Collaborative event was held in July 2020. The event focused on the fast approaching 2020/2021 flu vaccination programme, COVID-19, annual health checks and recognising and responding to physical deterioration. Watch the July 2020 webinar here.
Our third virtual collaborative in September 2020 focused on improving uptake and quality of Annual Health Checks for people with a learning disability. We also explored the Learn, Live, Lead improvement methodology and heard from expert speakers. Watch the September 2020 webinar here.
Our fourth virtual collaborative was held in November 2020, we explored some of the challenges surrounding advance planning conversations, heard from expert speakers and aimed to boost confidence in handling complex situations. Watch the November 2020 webinar here.
Supporting people with learning disabilities
Watch this short video produced by a member of the collaborative which shares news on the work across Gloucestershire to support people with learning disabilities, including the importance of Annual Health Checks.
Thank you to Gloucestershire CCG for producing and sharing this video.
Check out these excellent resources from our colleagues at the Sirona Community Learning Disability Team:
October 2019 Learning Disabilities Collaborative event
In October 2019, the West of England Learning Disabilities Collaborative held a second learning event. The day included an outstanding performance from the Misfits – a theatre group led by people with learning difficulties. There was also plenty of time for collaboration, networking and learning. Watch the video from October 2019 to find out more.
Collaborative launch in April 2019
In April 2019, we held our launch event for the Collaborative. With around 130 delegates from a wide range of backgrounds, including people with learning disabilities, the day was a brilliant start. Read more about our launch event in April 2019.
We believe our health service needs to get better at preventing, recognising and responding to physical deterioration in people with learning disabilities, by adapting systems and services to meet individual needs and by providing reasonable adjustment where necessary.
There are so many passionate people in the region working on these areas, with a desire to work together and bring the kind of collective change only possible through collaboration.
Projects currently underway include:
- acute trusts testing soft-signs tools; care home providers sharing solutions to improve uptake of annual health checks and flu vaccination;
- community and mental health trusts training new specialist staff in NEWS2; Read more about NEWS2.
- RESTORE2 being adapted for use with people with learning disabilities;
- and a passionate family carer is leading a project to ‘Spread the Word’ about flu vaccination.
Find out more
For further information, please contact our patient safety team and/or you can sign up to our LDC newsletter below: