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The West of England Learning Disabilities Collaborative

Responding to the findings of the Learning Disabilities Mortality Review (LeDeR programme) is a priority for the West of England. Read more about LeDeR programme.

The disparity between the age of death for people with learning disabilities (age 4 years and over) and the general population (all ages) in 2019 was 22 years for males and 27 years for females. Many of these deaths continue to be from avoidable causes, such as pneumonia and sepsis. Read more about the age of death disparities for people with learning disabilities here. 

The West of England Learning Disabilities Collaborative (LDC) was established in early 2019 to address this, by joining forces locally to focus on three key priority areas:

The West of England Learning Disabilities Collaborative is hosted by the West of England AHSN in collaboration with NHS England and NHS Improvement (South West) Learning Disability Programme Lead Nurse.

Read our plain-English summary of West of England AHSN.

On behalf of the NHS, Misfits Theatre Company have created a great video which tackles the misinformation surrounding the flu vaccination and urges people with learning disabilities and their carers (family member or support worker) to get their flu vaccine.

Our 2021 virtual collaborative events

January 2021

Our fifth virtual collaborative was held in January 2021. We explored the value of technology in supporting people with a learning disability and heard from expert speakers. Watch the January 2021 webinar here.

View the January 2021 webinar slides here

View the January 2021 webinar chat here

March 2021

Our sixth virtual collaborative was held in March 2021. In the session we explored Mental Capacity Assessment. Watch the March 2021 webinar here.

View the March 2021 webinar chat here

Our 2020 virtual collaborative events

June 2020

We hosted our first virtual Learning Disabilities Collaborative event in June 2020. Topics covered include COVID-19, recognising and responding to physical deterioration, annual health checks, and looking ahead to this year’s flu vaccination programme. Watch the video from June 2020 here. 

View the June 2020 webinar slides here

View the June 2020 webinar chat here

July 2020

Our second virtual Learning Disabilities Collaborative event was held in July 2020. The event focused on the fast approaching 2020/2021 flu vaccination programme, COVID-19, annual health checks and recognising and responding to physical deterioration. Watch the July 2020 webinar here. 

View the July 20 webinar slides here

View the July 20 webinar chat here

September 2020

Our third virtual collaborative in September 2020 focused on improving uptake and quality of Annual Health Checks for people with a learning disability. We also explored the Learn, Live, Lead improvement methodology and heard from expert speakers. Watch the September 2020 webinar here.

View the September 20 webinar slides here

View the September 20 webinar chat here

November 2020

Our fourth virtual collaborative was held in November 2020, we explored some of the challenges surrounding advance planning conversations, heard from expert speakers and aimed to boost confidence in handling complex situations. Watch the November 2020 webinar here. 

View the November 2020 webinar slides here

View resources and useful information on topics covered in the November 2020 webinar here

Supporting people with learning disabilities

Watch this short video produced by a member of the collaborative which shares news on the work across Gloucestershire to support people with learning disabilities, including the importance of Annual Health Checks.

Thank you to Gloucestershire CCG for producing and sharing this video.

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Check out these excellent resources from our colleagues at the Sirona Community Learning Disability Team:

October 2019 Learning Disabilities Collaborative event

In October 2019, the West of England Learning Disabilities Collaborative held a second learning event. The day included an outstanding performance from the Misfits – a theatre group led by people with learning difficulties. There was also plenty of time for collaboration, networking and learning. Watch the video from October 2019 to find out more.

Collaborative launch in April 2019

In April 2019, we held our launch event for the Collaborative. With around 130 delegates from a wide range of backgrounds, including people with learning disabilities, the day was a brilliant start. Read more about our launch event in April 2019. 

We believe our health service needs to get better at preventing, recognising and responding to physical deterioration in people with learning disabilities, by adapting systems and services to meet individual needs and by providing reasonable adjustment where necessary.

There are so many passionate people in the region working on these areas, with a desire to work together and bring the kind of collective change only possible through collaboration.

Projects currently underway include:

  • acute trusts testing soft-signs tools; care home providers sharing solutions to improve uptake of annual health checks and flu vaccination;
  • community and mental health trusts training new specialist staff in NEWS2; Read more about NEWS2. 
  • RESTORE2 being adapted for use with people with learning disabilities;
  • and a passionate family carer is leading a project to ‘Spread the Word’ about flu vaccination.

Find out more

For further information, please contact our patient safety team and/or you can sign up to our LDC newsletter below:

Learning Disabilities during COVID-19

If you work in a care home or organisation for people with Learning Disabilities and would like some further information on how we can support you or available resources and training please view our page here.

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Managing Deterioration Safety Improvement Programme

Spotting and acting on the signs of deterioration in a patient or care home resident is vital to ensuring patient safety. Our Managing Deterioration Safety Improvement Programme helps health and social care staff spot the signs of, and manage, deterioration.

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